Sometimes, I want to cry... Just cry and cry and cry... Wish it was all over...
It hurts you know, knowing you won't get better. That there is no cure.
I was at the peak of my life. I was about to get my life on track. And then this?!? I don't know if I should get angry at myself... Or who I should get angry to... Who's fault why I have this?
I have lupus. No one knows why or how people get it. No one knows how to get rid of it for good. All they know is how to treat the current pains and conditions. Which, I would have thought they should have known by now. We got technology that never existed before. Why are we still in the dark about a disease they found half a century ago.
Sometimes, I just want this all to end. To never wake up and stop being in pain. To stop being a burden. A burden to myself and to all the people I love.
I am one of those people who wants to be normal. I am one of those who wants to have a family of their own. I'm one of those people who is waiting to have a cure.
When will we find a cure?
I will write till the world knows more about me, and about Lupus. Forgive me, I am a bit of a scatterbrain, so this will be random, unorganized, unedited and plain casual. :) I do hope you will read about me soon...
Sunday, May 20, 2012
Tuesday, May 15, 2012
The wait is over.. :)
IT'S FINALLY HERE!!!
Will be a gaming blog for a few posts.. :) just enjoying my game..
100th post - My Latest Lab & Doctor Appointment
I haven't actually wrote anything for so long, because there is nothing new to really to write about. But I know, some of you want to know updates regarding the status of my health.
So here it is... I am getting better.
They, my doctors, think I am on my way.. but of course there is a lot of thing they have to check before they would say I am in a good condition. :) I want to have my babies soon you know.
So last May 4th, I went to my Lab appointment. They took only 2 vials of blood, which means they will be doing only 2 types of test. The thing is, I have to fast for at least 14 hours. I think I ate something bad that didn't quite settle. I ate 2 chicken tamales, and drank 1 ice blend coffee from CBTL. I guess that was a bad call anyway, but I have the biggest craving for a frappe. :)
Since I haven't ate that much, and was also having side pains, maybe coz I TRIED to exercise but didn't quite follow thru, I puked water the next morning.. My poor baby love couldn't do anything but look at me. But I was alright, it's just a bad choice of food before fasting.
I went to my lab, get my blood work.. drank so much water but they didn't even take urine.. LOL
When I get there on my actual appointment date, i just waited and waited and waited. And when my doctor finally see me, all he did was interview me, see if my other doctors are doing something that is not good for me. I told him I am gaining weight, he said that is normal for someone on steroids; he had my blood check for cholesterol and diabetes, which I both don't have. :) He said tons of exercise but not too much.
So I do think I am getting better, well if you think that I am not, do not forget to comment. :)
I am new at this thing, and I haven't actually researched, since I am too busy thinking about what to do with my weight... Just thinking.. LOL
I found out something new too!!! :)
My primary doctor decided to have an ophthalmologist check on my eyes and also I will be having a bone density exam. Apparently, being on steroids for so long could make my bad eyesight worse, or me having a lighter bone density that I am suppose to have.
No new medicine this time, just keep drinking what I have. Will be having an appointment for contraceptives, eye check-up and bone density check. :)
So maybe after that, I might, and 100% say that I am on a road to full recovery.. :)
Wish me luck.. :D
So here it is... I am getting better.
They, my doctors, think I am on my way.. but of course there is a lot of thing they have to check before they would say I am in a good condition. :) I want to have my babies soon you know.
So last May 4th, I went to my Lab appointment. They took only 2 vials of blood, which means they will be doing only 2 types of test. The thing is, I have to fast for at least 14 hours. I think I ate something bad that didn't quite settle. I ate 2 chicken tamales, and drank 1 ice blend coffee from CBTL. I guess that was a bad call anyway, but I have the biggest craving for a frappe. :)
Since I haven't ate that much, and was also having side pains, maybe coz I TRIED to exercise but didn't quite follow thru, I puked water the next morning.. My poor baby love couldn't do anything but look at me. But I was alright, it's just a bad choice of food before fasting.
I went to my lab, get my blood work.. drank so much water but they didn't even take urine.. LOL
This is where they took blood, it bruised after 2 days Which is not a good thing, means the person who took it is not really that good. |
So I do think I am getting better, well if you think that I am not, do not forget to comment. :)
I am new at this thing, and I haven't actually researched, since I am too busy thinking about what to do with my weight... Just thinking.. LOL
I found out something new too!!! :)
My primary doctor decided to have an ophthalmologist check on my eyes and also I will be having a bone density exam. Apparently, being on steroids for so long could make my bad eyesight worse, or me having a lighter bone density that I am suppose to have.
No new medicine this time, just keep drinking what I have. Will be having an appointment for contraceptives, eye check-up and bone density check. :)
So maybe after that, I might, and 100% say that I am on a road to full recovery.. :)
Wish me luck.. :D
Thursday, May 10, 2012
May 10 is World Lupus Day
I don't need you to donate, but if you can please do... today is World Lupus Day.
Help us find a cure, and help us raise awareness.
Thank you and have a nice day...
BTW, HAPPY MOTHER'S DAY TO ALL MOTHERS IN MEXICO, AND CENTRAL AMERICA! i think... but for sure mexico.. :D
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