My monthly pains...

It's not really fun to have a monthly period... to both women, and men with women... :)

The PMS, the cramps and that yucky feeling...

But then it gets really worse when you have lupus... Seriously... I always look forward to my monthly period... Just to get over it, and of course to make sure I am not pregnant, since I am on medication that is pretty toxic for a fetus.

Monthly, around the same time as my period, pimples, joint pain on my hands, feet and shoulders, itchy, annoying rashes sprung out. it really sucks.. Like really bad. I hate it.

I can't do anything about it, just accept that it will be over soon.. and the cycle starts again.

:( i need a cure for lupus. we, the  millions of people affected with lupus, do. :((

Sleep Deprived. Part 2

Still not able to get a straight sleep of at least 6 hours. Still wakes up in the middle of the night and awake for at least 2 or 3 hours after. Still waking up at the same time though. I think it is because I took a nap or something in the middle of the day. I am thinking of trying this, sleep if you can thing.

I don't exactly know what it is called, but one of my classmate some semesters ago is doing it. He sleeps anywhere, anytime, if he can. Like you I saw him sleeping for a good 10 minutes in class. But in total, he would only sleep like 3 hours a day. it's like he has a power nap all the time that keeps he alert and awake. But I don't think I would be that intense. I still try to go back to sleep every time i wake up. But then sometimes I would think of something to do that I forgot or would like to see. I blame Facebook for being sleep deprived! LOL

I would try to discuss it my doctor when I see her again.

Also, I took 25mg of Prednisone today, some of my joints, which don't hurt even when I have my Lupus flare up, are hurting. And I think it's because I went from a 30 to 25 mg in 2 weeks, and 25 to 20 in a week. I don't know for sure, but I am hurting. And since my doctor told me that if I am not feeling well about I just raise it back to what it was. So, i only have been drinking 20mg for 3 or 4 days. Sucks. I would really like to be out of the steroid pill. It's a bit hard to be weaned down from it. But then that is the only thing that's actually controlling my skin rashes and joint pain. Noticed too, that I have been eating a lot, so I am trying to control that... hehehe

So far, and as far as I am concerned. I think I am getting good health. :) so thank God!!

I'm nervous...

I am going to have a skin biopsy tomorrow, due to some rashes on my skin since I got the Lupus. I wonder what kind of meds the dermatologist will be giving me again...

Hohummm... I need to be really careful. This Lupus thing is manageable. I could survive, live life to the fullest. Have the family I want.

 I need to get better... I will get better!!!